The Víctor Grífols i Lucas Foundation organized a discussion day attended by professionals from the worlds of journalism and communication.
The Foundation workshop "Maleficence in prevention programmes" was attended by forty public health professionals from institutions and public bodies across Spain
The Víctor Grífols i Lucas Foundation yesterday organized a workshop in "Maleficence in prevention programmes," attended by forty public health professionals from institutions and public bodies across Spain.
As Mateu Huguet, director of the Institute for Health Studies of the Government of Catalonia, explained, "the ethical aspect of public health is still relatively neglected, and that is why courses such as this are so innovative." Huguet went on to say that he was keen to collaborate with the Foundation in organizing annual activities to address these issues.
The workshop was designed to address ethical aspects of secondary breast cancer prevention programmes which use biannual breast scans to screen populations of apparently health women aged between 50 and 74. Although this initiative has reduced mortality in the target population, many individuals receive no direct benefit and some of them suffer adverse effects. These programmes and the information provided to those taking part in them were analysed from an ethical perspective.
Foundation collaborates with Bioethics Committee of Catalonia to produce publication
The Foundation has collaborated with the Bioethics Committee of Catalonia to publish the manual Recomendaciones a los profesionales sanitarios para la atención a los enfermos al final de la vida. [Advice to health professionals caring for patients at the end of their lives] The document is designed to help professionals caring for patients who are near the end of their lives, whatever the discipline or specialism.
The handbook has not been designed as a theoretical treatise or a technical protocol, but rather is intended to be a useful document which will help understand the values which should underpin care for those who are dying. The issues it considers include basical clinical decisions, providing assistance in different care settings, and clarifying some of the confusions regarding ethical and legal issues.
The book has been published in Spanish and Catalan, and can be downloaded in PDF format.
Publications request:
Comitè de Bioètica de Catalunya
In the Calendar section, dates for seminars, courses and conferences can be found.
Calendar
On 9 March at the Official College of Nursing in Barcelona (COIB)
The handbook, Ética en enfermería( Essentials of Teaching and Learning in Nursing Ethics) written by Anne Davis, Verena Tschudin and Louis de Raeve, is published by Triacastela, with translation sponsored by the Foundation. The presentation will be attended by one of the book's authors, Verena Tschudin, who will give a lecture on the need for ethical training for health professionals in general and for nurses in particular.
9 March, 18:30 pm.
Registration
Program
Location:
The Víctor Grífols i Lucas Awards Jury has announced the winners of its prizes and grants for 2008-2009.
Research Prize:
David Rodríguez-Arias Vaihen, for his work: Brain death and organ transplants: international and ethical aspects.
Research Grants:
To the team led by Josefa Fernández Barrera of the Department of Social Work and Social Services in the Faculty of Education of the University of Barcelona for the study: Social work with families: the responsibility of social workers in the self-determination of the most vulnerable groups.
To Ana Lucía Noreña Peña and Elena Ferrer of the University Hospital of San Juan in Alicante for their work: Research protocol: "Listening to the voices of children. Ethical aspects of the process of informing hospitalized minors."
To José Luís Pérez Tr
Summaries of the Egozcue lectures and the course "Care during the process of dying" are now available on the website.
Summaries of Ruth Macklin's lectures on "Ethics and clinical research", delivered on 27 and 28 October, and of the course "Care during the process of dying" now available on the website. In the Activities completed section, users can download summaries and other related documents.
The Foundation aims to make the materials related to the workshops, courses and lectures it organizes available to all users. All these documents are available in PDF format via the Activities completed section.
Summary of Ruth Macklin's lectures
Summary of the course ""Care during the process of dying"
The Víctor Grífols i Lucas Awards Jury has announced the winners of its prizes and grants for 2008-2009.
Research Prize:
David Rodríguez-Arias Vaihen, for his work: Brain death and organ transplants: international and ethical aspects.
Research Grants:
To the team led by Josefa Fernández Barrera of the Department of Social Work and Social Services in the Faculty of Education of the University of Barcelona for the study: Social work with families: the responsibility of social workers in the self-determination of the most vulnerable groups.
To Ana Lucía Noreña Peña and Elena Ferrer of the University Hospital of San Juan in Alicante for their work: Research protocol: "Listening to the voices of children. Ethical aspects of the process of informing hospitalized minors."
To José Luís Pérez Triviño of the Department of Legal Philosophy at the Pompeu Fabra University of Barcelona for the study: Positive eugenics and its impact on sporting practice.
To the team led by María Isabel Tamayo Velázquez of the Andalucian School of Public Health for the work: Portal on advance directives across the world.
Journalism prize:
To the programme Einstein a la platja by Barcelona Televisió titled: Adéu als gens omnipotents (Farewell to omnipotent genes) broadcast on 1 November 2008.
November, 9th-10th, at the Centre de Cultura Contemporània of Barcelona. Registration grants available.
The Foundation and the Consorci Universitat Internacional Menéndez Pelayo de Barcelona (CUIMPB) organize the course "Ayuda en el proceso de morir" (Helping to die) next November, 9th and 10th. The aim of this course is analyzing professional help provided to patients within the process of dying and how can this be improved.
The course will go in depth with changes undergoing in society when facing the death. Also it will provide knowledge, communication skills and guidelines to be used at end of life situations.
Registration
www.cuimpb.cat
Registration grants available. Applications must be sent by e-mail to fundacio.grifols@grifols.com, including personal details.
No need to register at CUIMPB University.
Free Election Credits:
Interested to obtain free election credits must address to CUIMPB Students Office. info@cuimpb.cat
Place:
Centre de Cultura Contemporània de Barcelona
C/ Montalegre, 5 Barcelona
Ruth Macklin, doctor in philosophy and professor of bioethics at the Albert Einstein College of Medicine in New York, will be responsible for delivering the 3rd Josep Egozcue Lecture Cycle, to be held on 27 and 28 October at the Institute for Continuing Education of Pompeu Fabra University of Barcelona.
Doctor Macklin is a leading authority in bioethics, and combines teaching and research duties, specializing in AIDS and reproductive health in developing countries. She is currently a member of the Ethics Committee of the World Health Organization (WHO), an organization for which she has worked on a number of programs.
Program:
October, 27 at 7.00 pm.Opening lecture:
Printed copies of monographs can be ordered via the Foundation's website, where they can also be downloaded in PDF format.
This will be held in October as part of the 2008-2009 annual awards ceremony
Generic title
Research Involving Human Participants: What are the ethical issues today confronting researchers and research ethics committees?
Lecture 1 (the general lecture):
Unresolved problems in the design and review of research proposals; newer ethical issues raised by advances in medical science and technology
Specialized Lectures:
Multinational Research: Exploitation or benefit in low-resource countries?
For the past decade, bioethics has been exploring concerns that arise when industrialized countries or the pharmaceutical industry conduct clinical trials in developing countries. Is it acceptable to do research with human participants in these countries when the same research could not ethically be conducted in developed countries?
Grey Areas in Research with Human Participants: Determining what is research, what is novel treatment, what is standard of care?
It is sometimes difficult to determine when an activity is research and when it is aimed at improving the quality of care in a hospital setting or when it should be viewed as public health practice rather than public health research. When physicians embark on novel treatments, are the conducting research? Or deviating from the "standard of care"?
This well known health consultant, James Rice, compares management models in the public and private sectors
On July 2, James Rice, president of Integrated Healthcare Strategies, gave a conference at the Víctor Grífols i Lucas Foundation on ethics in health management models. His speech dealt with different health management companies from the public and private sectors in Catalonia. Also in attendance was Basque Country health minister, Rafael Bengoa.
James Rice organized a practical and interactive session in which he talked about his experiences in the health sector. In his career, he has worked in more than 30 countries in public administration, universities and even private companies.
According to this expert, "no matter which country you examine, people will always be dissatisfied with their health system". According to Rice, it is impossible to establish a clear separation between public and private models because many variations of mixed models coexist. He gave the example of Spain, where each province has its own separate health management model. Throughout his speech, Rice gave various examples to address ethical questions which arise in managing resources and services, and those in attendance participated. The Foundation will publish a synopsis of the conference shortly.
The book offers an in-depth exploration of nursing ethics content.
Edited by Anne Davis, Verena Tschudin and Louis de Raeve, the book also includes the collaboration of several nursing experts.It addresses cross-cultural issues in using specific ethics content. It also reveals the poverty of the present dualism model in nursing ethics and replace this with a more complex and more useful model that invites debate. Its scope is both wide and deep but that is needed to enrich the basis for teaching nursing ethics.
This event will be held on July 2nd at 6 pm at Universitat Pompeu Fabra in Barcelona
The Fundació Víctor Grífols i Lucas in collaboration with Center of Economics and Health Research of Pompeu Fabra University, organise the lecture: "The Ethics of Public versus Private Management of Healthcare Delivery Systems: Insights and Initiatives", which be held by James A. Rice, Ph.D. Director, Cambridge International Health Leadership Programme de Cambridge, England, under the auspices of Global Health Leadership Forum in Barcelona.
Dr. Guillem López i Casasnovas, member of The Board of Trustees of the Foundation, will chair the lecture.
Place: Sala de Graus-Albert Calsamiglia (40.035), Universitat Pompeu Fabra de Barcelona. c/Ramon Trias Fargas, 25-27.
Date: 2 July at 6 p.m.
Simultaneous translation into Catalan will be provided.
Inscriptions at: fundacio.grifols@grifols.com
Related documents on today calendar
More information:
Global Health Leadership Forum 2009