All publications

Collaborations

Collaborations

09. Tecnologías y nuevas relaciones en el cuidado

09. Tecnologías y nuevas relaciones en el cuidado

Publicació on Ingunn Moser reflexiona sobre l'impacte de les tecnologies en les relacions del tenir cura.

En aquesta publicació la sociòloga Ignunn Mose desenvolupa un marc per treballar en l'avaluació i en la presa de decisions per a la implementació de la tecnologia del benestar. Per altra banda, es compta amb el testimoni de professionals de diverses disciplines que han impulsat grans iniciatives. El present llibre recull les reflexions sorgides de la tercera edició del Seminari Ètica i Valors del tenir cura, organitzada pel Col·legi Oficial d'Infermeres i Infermers de Barcelona amb la col·laboració de la Fundació Víctor Grífols i Lucas.

 

Per sol·licitar un exemplar, adreceu-vos a  Anna Almirall aalmirall@coib.cat


08. Nuevas políticas del cuidar (New policies of care)

08. Nuevas políticas del cuidar (New policies of care)

Marian Barnes reflects on care, a universal human experience where the need for alliances is paramount.

Marian Barnes, sociologist and social policy expert, approaches the ethics of care from a perspective that transcends illness and economic hegemony. This publication includes two lectures give at the seminar on Ethics and the values of care, organized by the Official College of Nurses of Barcelona, in partnership with the Víctor Grífols i Lucas Foundation. 


07. Los niños y la investigación clínica: aspectos éticos

07. Los niños y la investigación clínica: aspectos éticos

Conclusions and summary of the report entitled Children and Clinical Research. Only available in Spanish.

Conclusions and summary of the report entitled Children and Clinical Research, conducted by the Nuffield Council on Bioethics. Fundació Víctor Grífols i Lucas has sponsored the Spanish edition of this document.
Clinical research with children poses a great deal of ethical questions. The Nuffield Council on Bioethics has published a report entitled Children and Clinical Research, which analyses how clinical trials can be performed on children in an ethically acceptable manner. It addresses issues such as the role of the different parties involved, child protection and involvement and the constraints posed by these kinds of studies. 
 
Document only available in Spanish.

06. Participación de los niños y jóvenes en la investigación clínica: cómo hacerlo correctamente

06. Participación de los niños y jóvenes en la investigación clínica: cómo hacerlo correctamente

Publication aimed at parents, children and adolescents.

Document only available in Spanish.

Publication aimed at parents, children and adolescents which summarises the main recommendations from the Nuffield Council on Bioethics regarding clinical research with children. The Spanish edition of this document is sponsored by Fundació Víctor Grífols i Lucas.
How can research studies on children be conducted in an ethically acceptable manner?  Which role should children, young people and parents play in order to influence the way these studies are conducted? The Nuffield Council on Bioethics has examined these issues with a working group comprised of experts, and backed up by parents and young people. The results are outlined in the following report: Children and Clinical Research. This document, aimed at patients and their relatives, summarises the main conclusions.
 
Document only available in Spanish.

05. Luces y sombras en la investigación clínica

05. Luces y sombras en la investigación clínica

Lead by Rafael Dal-Ré, Xavier Carné and Diego Gracia, with collaborations from more than 40 authors

Dal-Re, R; Carné, X; Gracia, D; Lights and shadows in clinical research. Madrid: Triacastela; Víctor Grífols i Lucas Foundation, 2013 ISBN: 978-84-95840-83-7
 
The foundation has sponsored the publishing of this book that explores the positive and negative aspects of clinical research. Ranging from personal reflections made from the perspective of the patient, the investigator or the ethics committee, to innovative approaches to issues such as clinical trial design, how to reduce the complexity and how to analyze the benefit-risk balance of medicines.

 

Indice


Indice
Indice autores
Presentación
Victoria Camps
Introducción
Rafael Dal-Ré, Xavier Carné y Diego Gracia
Capítulo 1: La integridad científica como fundamento esencial de la investigación clínica
Santiago Lamas, Carmen Ayuso
Capítulo 2: Práctica clínica e investigación clínica
Diego Gracia
Capítulo 3: Investigación clínica: cómo hemos llegado hasta aquí
Rafael Dal-Ré, Xavier Carné, Diego Gracia
Capítulo 4: Los protagonistas del ensayo clínico

Pilar Hereu, Josep Mª Arnau
Capítulo 6: ¿Es necesario que los ensayos clínicos sean tan complejos?
Gonzalo Calvo Rojas, Mohammed Ezzeldin Sharaf, Joaquín S. Peñataro
Capítulo 7: Cuestiones éticas y reguladoras de la finalziación prematura de los ensayos clínicos
Emilio Vargas Castrillón, Ana Isabel Terleira Fernández, Antonio Gómez Outes
Capítulo 8: Aspectos metodológicos y éticos de los ensayos clínicos en conglomerados
Esther Prieto Martín de los Santos, Antonio Portolés Pérez
Capítulo 9: Nuevos diseños en investigación clínica
Caridad Pontes, José Ríos, Ferran Torres
Capítulo 10: Cómo manejar los hallazgos inesperados en investigación genética
Carmen Ayuso, José Mª Millán, Rafael Dal-Ré
Capítulo 11: La farmacogenética desde una perspectiva crítica
Teresa Cabaleiro, Dolores Ochoa, Francisco Abad Santos
Capítulo 12: Los resultados comunicados por los pacientes en los ensayos clínicos
Michael Herdman, Núria Fernández
Capítulo 13: Evaluación de la relación beneficio-riesgo de los medicamentos: evidencia, cuantificación e incertidumbre
Andrew Maguire, Francisco J. de Abajo
Capítulo 14: Investigación comparativa de la efectividad
Antonio J. Carcas Sansuán
Capítulo 15: Iniciativa europea para la realización de ensayos clínicos académicos
Nuria Sanz, Jacques Demotes, Christine Kubiak
Capítulo 16: El papel de los biobancos en la investigación clínica
Sandra Zazo, Federico Rojo
Capítulo 17: El futuro de los ensayos clínicos con medicamentos
César Hernández García, Mariantonia Serrano Castro, Luis Arturo Pérez Bravo
Capítulo 18: La investigación clínica en países de renta baja
Xavier Carné, Esperança Sevene, Clara Menéndez
Capítulo 19: Proceso de revisión por expertos
Francesc Cardellach, Josep M. Ribera, Marta Pulido
Capítulo 20: La comunicación de los resultados: cuando la integridad se rompe

Rafael Dal-Ré
Capítulo 22: Los conflictos de intereses en el desarrollo de las guías de práctica clínica
Rafael Dal-Ré


04. Confesiones de un médico

04. Confesiones de un médico

The Spanish version of 'Confessions of a Medicine Man: An Essay in Popular Philosophy'

Tauber, A; Confesiones de un médico. Un ensayo filosófico. Madrid: Triacastela; Fundació Víctor Grífols i Lucas, 2011. ISBN: 978-8495840-60-8
 

Triacastela, with sponsorship from the Foundation, has published the Spanish version of Confessions of a Medicine Man: An Essay in Popular Philosophy.  In his book, Alfred Tauber offers a personal introduction to the history of bioethics, to the evolution of the healthcare system in the United States and to the main 20th century philosophical schools of thought through illustrative autobiographical episodes in the life of a doctor.
 

Alfred Tauber is one of the main medical humanities authors in the United States.  He is Professor of Medicine and Professor of Philosophy at Boston University and for many years he was director of the Boston University Center for Philosophy and History of Science.  His book Confessions of a Medicine Man won the prize for the best academic book awarded by the American Libraries Magazine and also the American Medical Writers Association first prize.
 

Available in bookshops and other customary points of sale.


03. Advice to health professionals caring for patients at the end of their lives

03. Advice to health professionals caring for patients at the end of their lives

Foundation collaborates with Bioethics Committee of Catalonia to produce publication  

The Foundation has collaborated with the Bioethics Committee of Catalonia to publish the manual Recomendaciones a los profesionales sanitarios para la atención a los enfermos al final de la vida. [Advice to health professionals caring for patients at the end of their lives] The document is designed to help professionals caring for patients who are near the end of their lives, whatever the discipline or specialism.

The handbook has not been designed as a theoretical treatise or a technical protocol, but rather is intended to be a useful document which will help understand the values which should underpin care for those who are dying. The issues it considers include basical clinical decisions, providing assistance in different care settings, and clarifying some of the confusions regarding ethical and legal issues. The book has been published in Spanish and Catalan, and can be downloaded in PDF format.


02. Ética en enfermería (Nursing Ethics)

02. Ética en enfermería (Nursing Ethics)

The book offers an in-depth exploration of nursing ethics content from the western philosophical tradition and some of the methods used in teaching this content.

Davis, A.J.; Tschudin, V.; de Raeve, L.; Ética en enfermería. Conceptos fundamentals de su enseñanza. Madrid: Ed. Triacastela; Fundació Víctor Grífols i Lucas, 2009. 396 p. ISBN: 978-84-95840-40-0.

Edited by Anne Davis, Verena Tschudin and Louis de Raeve, the book also includes the collaboration of several nursing experts.

It addresses cross-cultural issues in using specific ethics content. It also reveals the poverty of the present dualism model in nursing ethics and replace this with a more complex and more useful model that invites debate. Its scope is both wide and deep but that is needed to enrich the basis for teaching nursing ethics.

Available at bookshops and usual points of sale. 



01. Ética clínica

01. Ética clínica

The Foundation and editorial Ariel have made this practical manual designed to confront ethical problems which arise in clinical practice more readily accessible to the Spanish speaking public.

Ética Clínica: aproximación práctica a la toma de decisiones éticas en la medicina clínica. (Clinical Ethics: a practical approximation to ethical decisión making in clinical medicine) Barcelona: Ed. Ariel; Fundació Víctor Grífols i Lucas, 2005. 351 p.ISBN: 84-344-3719-5. 20,00€.

With the translation of Clinical Ethics, the Foundation and editorial Ariel have made this practical manual designed to confront ethical problems which arise in clinical practice more readily accessible to the Spanish speaking public. Clinical Ethics offers the method of the four parameters, some illustrated examples of clinical cases, the most widely accepted opinions on the most polemic questions of our time, reflections of an ethical nature and practical coverage of legal aspects. In short, a modern guide to ethics in medical assistance. 

Available at bookshops and usual points of sale. 


Ethical questions

Ethical questions

Pedagogía de la bioética. Comunicaciones.

Publication containing communications presented at 1st International Bioethics Conference, organized by the Grifols Foundation Chair of Bioethics at Vic. Addresses a range of topics related to health professionals, university teaching, bioethics and the relationship between bioethics and society. 

Only available in pdf format.


Rethinking the body

This publication reflects on different ways of understanding the body, from three different perspectives: the shift from the body as an object to the body as subject; the body from the artistic perspective; and the insights of psychoanalysis.


03. Surrogate pregnancy: an analysis of the current situation

Most coutries prohibit surrogate pregnancy also know as surrogate motherhood or "Mathers for hire". Due to this legislation many people travel to other countries where local legislation allows them to do this.  Philosophers, doctors, lawyers and psycologists give their explanations on the current situation surrounding this assited reproduction technique.


02. Sexuality and the emotions. Can they be taught

This publication is the result of dialogue between a group of education experts with an interest in sex education. It is designed to offer a set of ideas, opinions and considerations on this subject to those responsible for educating children and adolescents (parents, teachers, sociologists, etc.).


01. What should we do with persistent sexual offenders

The Victor Grifols i Lucas Foundation offers the discourses from the workshop "What should we do with persistent sexual offenders?" This debate workshop formed part of the "Ethical Questions" series and was attended by the following participants: Enrique Echeburúa, Professor of Clinical Psychology at the Universidad del País Vasco; Mercedes García Arán, Professor of Law at the Universitat Autònoma de Barcelona; José María Mena Former Director of Public Prosecutions of the Catalonian High Court of Justice; Joan Carles Navarro, Director of Can Brians penitentiary and Santiago Redondo Illescas, full time Professor of Psychology and Criminology from the Psychology Faculty of the Universitat de Barcelona.


Monographs

Monographs

52.Ética y promoción de la salud. Libertad-paternalismo. (Ethics and health promotion. Freedom vs. Paternalism)

Health promotion requires an explicit ethical commitment that charts a path between excessive paternalism, on the one hand, and the neglect of those who stand to benefit from community health promotion projects, on the other. This publication, the product of a seminar held jointly with SESPAS, addresses the ethical debate about how to combine these opposing values (freedom and paternalism) from a variety of perspectives.

Only available in Spanish.


51. Una mirada ética en la gestión de conflictos

During the provision of health services, conflicts with service users often arise, and these may lead to complaints and even end up in the courts. Mediation can help prevent further harm for all parties. But this mediation must be ethical, and guided by values such as dialogue, impartiality and transparency.


50. Pensar la maternidad (Thinking about motherhood)

In recent years, motherhood has changed rapidly, raising new ethical problems. This publication reflects on the psychological, social, economic, political and employment issues that condition motherhood in today's society.


49. Publicidad y salud (Advertising and health)

During the last two decades, the world of communication has undergone a radical transformation, which has also affected the health sector. This has had an impact not just on medical advertising but also – more widely – on all publicity that has an impact on health and lifestyles. This publication reflects on the main dilemmas raised by this new situation.


Q48. Prioridades y políticas sanitarias (Health priorities and health policies)

Health systems have to prioritize, and are under a moral and political obligation to decide which services and which patients will receive preferential treatment given the inevitable fact that resources are limited. This monograph considers how to establish these priorities, combining theory and philosophical analysis with specific experience of resource distribution.


47. Ethics and plasma donation: an overview

Publication analysing the paid and altruistic models of plasma donation. Offers ethical considerations and describes the models that exist in Catalonia and the United States. Draws on contributions from industry experts, blood bank professionals, doctors, donors and patients.