Monographs

70. Las enfermedades minoritarias, un reto para la bioética

(Rare diseases: a great challenge for bioethics)

There are currently about 7,000 rare diseases described, affecting about 300 million people in the world. They are degenerative diseases, and in many cases lethal. They tend to have a long and complex therapeutic journey, starting with the difficulties of diagnosis. Therefore, when we speak, we must do so from the triad: sick person, family members and health professionals.

Relevant aspects such as early diagnosis,the day-to-day difficulties for the person and their environment, the importance of early diagnosis, genetic counselling, research with all its implications and the very high cost of drugs, put on the table a series of ethical questions that are dealt with in this book.

The publication is the result of a workshop organized with the collaboration of the Dr. Torrent-Farnell Foundation.

Fill out the form below to request the download of the publication. Once your request is submitted, you will receive a download link by email

All fields are required unless otherwise stated

First Name

Last Name

Email Address

I would like to receive future communications from Grifols Foundation (Optional)

Data Protection Information
The Grifols' group company to which you submit the request, as data controller or data owner, will process your personal data to manage your requests. The legal basis is Grifols' legitimate interest, consent or contract execution. Your data may be shared with Grifols' group companies and other third parties mostly providers of products and/or services hired by Grifols. You have the right to access, rectify and erase your personal data. For any other rights and additional information on personal data protection review the Privacy Notice.

recaptcha-check Required

By clicking the button below, I agree that my data will be used as described in this form.