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Participación de los niños y jóvenes en la investigación clínica: cómo hacerlo correctamente

(Involving children and young people in clinical research: how to do it right)

Document only available in Spanish

Publication aimed at parents, children and adolescents which summarises the main recommendations from the Nuffield Council on Bioethics regarding clinical research with children. The Spanish edition of this document is sponsored by Fundació Víctor Grífols i Lucas.

How can research studies on children be conducted in an ethically acceptable manner? Which role should children, young people and parents play in order to influence the way these studies are conducted? The Nuffield Council on Bioethics has examined these issues with a working group comprised of experts, and backed up by parents and young people. The results are outlined in the following report: Children and Clinical Research. This document, aimed at patients and their relatives, summarises the main conclusions.

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