Talking about rare diseases with the FECAMM

3 June

To mark its 20th anniversary, the Federació Catalana de Malalties Minoritàries (Catalan Federation of Rare Disorders, FECAMM) will hold an event at the CaixaForum on 3 June in collaboration with the Fundació Víctor Grífols i Lucas.

This celebration will provide an opportunity for families of patients with rare diseases to get toether, play games and have fun. A parallel event will also be held to showcase the Federation’s work over the past twenty years, providing an opportunity to discuss rare diseases, milestones achieved and explore future prospects.

This event programme will include a presentation detailing FECAMM’s work over the past 20 years, a tribute to the people with rare diseases it has assisted during this time, as well as other presentations on the subject and a talk exploring the topic from a bioethical perspective. In addition, complementary activities will also be organized for rare disease sufferers as well as their families and companions.

Programme

Registration

3 June

6:00 - 8:00 p.m.

CaixaForum Barcelona

Av. de Francesc Ferrer i Guardia, 6-8
 

Event organized in collaboration with: