Càtedra de Bioètica Fundació Grífols


Bioethics and design come together in a project about ageing

Bioethics and design come together in a project about ageing

Collaboration between Elisava and the Víctor Grífols i Lucas Foundation

The Víctor Grífols i Lucas Foundation has partnered with Escuela Universitaria Elisava to provide advice and training to develop publishing projects about ageing. This prestigious design school, part of Pompeu Fabra University, contacted the Foundation at the start of the year after some of its students had expressed a desire to incorporate content, research and analysis in their design project on the subject of ageing.

 

The Foundation provided a bioethical perspective, delivering a session on subject, giving students the opportunity to ask questions, and advising them on their work in progress.

 

On 25 February, the students invited the Foundation to attend the presentation of their projects. Working in different groups, organized by subject, the students developed books, catalogues, magazines and online publications, and undertook parallel activities such as performances and reading groups. Both the Foundation and the students' teachers were impressed by the way these projects found fresh ways to address the topic with great sensitivity.


Documentary counter-attack to the new cyber-blackmail

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Documentary counter-attack to the new cyber-blackmail

Patricia Franquesa explores the ransomware attack suffered after the theft of her laptop.

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Documentary counter-attack to the new cyber-blackmail

28 April 2021

(Text available only in Spanish)

En un mundo gobernado por las redes sociales y el bigdata, nuestra intimidad está constantemente amenazada. Sus límites son los que explora el documental "Ole mi coño" de Patrícia Franquesa, ganadora del último Premio Audiovisual de Bioética. Patricia explica el caso de ransomware que sufrió en primera persona. Después del robo de su portátil, un hacker empezó a extorsionarla amenazándola con la difusión de unas fotos muy íntimas entre sus contactos.

Ante la ineficacia de la justicia y la policía, la protagonista empezó una investigación sobre los peligros y retos de la gestión de datos personales. Buscó respuesta en las redes, recurrió a expertos, se inspiró en pensadores y filósofos, y finalmente se dio cuenta de que la única forma de recuperar el control sobre su historia era compartirla con sus contactos. Cuando la hizo pública en las redes, el hacker dejó de hacerle chantaje. Y entonces decidió convertir esta experiencia en un thriller documental, aprovechando todo el material virtual que tenía. Conversaciones de Whatsapp, selfis, mensajes de voz, e-mails… Todos estos elementos dan lugar a un documental creativo que explora nuevos formatos audiovisuales.

La vulnerabilidad de nuestros datos

Además de un formato innovador y de una narrativa elaborada, su proyecto recibió el premio audiovisual de bioética por el debate que plantea. Los límites del bigdata, el derecho a la intimidad, la confidencialidad, la gestión de los datos… Como afirma Patricia "Ole mi coño" es el viaje de cómo tomé conciencia de la vulnerabilidad a la que nos enfrentamos dentro de la realidad algorítmica en la que vivimos".

"Es una oportunidad para sentir, entender y reaccionar a través de mi diario hacia las nuevas formas de violencia mediante los datos personales. El documental muestra como el problema se convierte en la solución", concluye.

Un premio como punto de partida

El premio audiovisual de bioética, concedido en octubre de 2020, fue el punto de partida para conseguir el apoyo de instituciones y festivales internacionales. "Fue muy importante recibir este apoyo inicial, que además venía de una entidad privada. A partir de aquí fuimos recibiendo más ayudas", explica Patricia. TV3 entró como co-productora, recibió financiación del Institut Català de les Empreses Culturals, el premio talento del Festival de Girona y fue seleccionada por el Hot Docs Forum Deal Maker, el mayor festival de documentales de Norteamérica, y también por el Docs Barcelona, donde presentará su proyecto ante inversores. Y en medio de toda esta vorágine, también tiene dos plataformas de cine interesadas.

No es fácil poder conseguir apoyo de tantas instituciones. Con el premio audiovisual de bioética, la Fundación Víctor Grífols i Lucas quiere dar un apoyo inicial a proyectos que conlleven una reflexión ética, y ayudarlos a tirar adelante. Hasta ahora se han premiado documentales sobre envejecimiento, duelo perinatal, salud mental, sostenibilidad, maltrato animal… La convocatoria de 2021 todavía está abierta y acepta candidaturas hasta el 31 de mayo.

Inspírate con los ganadores de otros años

 

Premio Audiovisual de Bioética

 


How has the pandemic influenced choice in social care and health studies?

How has the pandemic influenced choice in social care and health studies?

The Chair of Bioethics and the M₃O research group have launched a study to evaluate this question

To what extent has the COVID-19 pandemic influenced first-year students when choosing degree subjects in the social care, health and biomedicine spheres? The TEMPS project, led by the research group Methodology, Methods, Models and Outcomes of Health and Social Sciences (M₃O) and the Grífols Foundation Chair of Bioethics at UVic-UCC, seeks to find an answer to this question.

 


The study is designed to analyse the trends in matriculations and applications for the first year of degrees in the areas of social care, health and biomedicine in Spain during a six-year period, from 2016–2017 to 2021–2022. The researchers will use a survey to undertake a quantitative evaluation of the influence of the pandemic as a determining factor in the choice of university degrees in these areas, and will follow this up with a qualitative study of the experience of COVID-19 by students in the first year of social care, health and biomedical subjects (nursing, medicine, psychology, physiotherapy, etc.).

 


Javier Jerez, lead researcher of the TEMPS project, explained that "the aim is to understand the current situation and the impact of the pandemic on the choice of studies". Building on this, the intention is "to propose possible adaptations to the Spanish university system on the basis of the results obtained, in order to respond to current and future challenges".

 


The study also involves researchers from the universities of Málaga, La Rioja, A Coruña, the Basque Country and the Complutense University in Madrid, and is funded by the Víctor Grífols i Lucas Foundation. 


The end of life Bioethics Barcelona

12 May

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12 May

Final lecture in the cycle organized with Barcelona Friends of UNESCO to discuss bioethical issues. Núria Terribas, director of the Víctor Grífols i Lucas Foundation, will talk about the end of life, from a bioethical perspective.

 

We often struggle to accept that we are finite beings and that, sooner or later, our lives will end. This is the essence of what it means to be alive. Our society lives in a state of denial about our mortality and even more so when it comes to death itself, a subject we prefer not to think about. Unfortunately, situations involving both loved ones and strangers, such as the Covid pandemic, remind us that one day our time will come. Have we thought about this?

 

The aim of this lecture is to focus our attention on what we do and do not want in the end of life process. It is better if we are prepared for this final process, with clear criteria regarding the decisions to be taken, among other reasons in order not to offload responsibilities onto our nearest and dearest. These are the topics we look forward to discussing.

 

Registration

 

 

12 May

6:30 pm

Online activity.

 

Organized in partnership with:

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Ethics of Bioinformatics Training Toolkit

20 April

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20 April

The Víctor Grífols Foundation UVIC-UCC Chair of Bioethics and Bioinformatics Barcelona (BIB) published "Toolkit para formación en ética de la bioinformática" (Ethics of Bioinformatics Training Toolkit) by David Casacuberta, lecturer and researcher at UAB.

 

Although more attention is now paid to bioethical issues in bioinformatics studies, the curriculum does not yet include any reflection on or analysis of the ethical problems faced by this discipline. This book is designed as a resource to support teachers, to introduce reflection on ethical issues when training bioinformatics professionals.

 

The project is the result of the work of the Ethics and Data Security Group, a multidisciplinary group, established with the aim of sharing knowledge and offering practical tools for bioinformatics professionals who handle sensitive information.

 

Learn more about this project here

 

On 20 April, the book's author, David Casacuberta, presented the project via Zoom at a virtual event that also included contributions from Jordi Quintana (Coordinator of the Working Groups of Bioinformatics Barcelona) and Núria Terribas (director of the Víctor Grífols Foundation UVIC-UCC Chair of Bioethics).

 

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Video of the presentation

 

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