Preterm birth is the leading cause of infant mortality and disability in countries of the EU. While advances in perinatology have achieved a disability-free survival rate exceeding 90% in pregnancies beyond 26 weeks, outcomes vary significantly for pregnancies under 25 weeks.

From a bioethical perspective, determining the gestational age limit for viability is a difficult task which is usually based on the likelihood of survival without long-term consequences for the infant. Defining this limit is crucial when deciding whether the newborn should receive active life-sustaining treatment or palliative care.

This project examines the ethical dilemmas that arise in the care of extremely premature infants, evaluating the perceptions of families and healthcare professionals regarding the information provided and decision-making related to the limits of infant viability. Its goal is to develop a guide that improves communication with all those concerned, ultimately enhancing the quality of life for premature infants and their families.