Incertitude, autonomy and use of predictive genetic testing: Beyond individual consent
05 January 2014
Eduardo Alfonso Rueda Barrera, Professor at the Bioethics Institute at Universidad Javeriana of Bogotá
The development of predictive genetic testing has received growing attention in recent years due to the benefits it seems to promise. These techniques aim to discover each individual person's susceptibility to developing specific illnesses and/or to developing side effects in response to certain medication.
In circumstances of great uncertainty, the process of informed consent experiences new and important challenges. Rewarded research is oriented to exploring these challenges and to providing reasons for subjecting the consent process to more demanding procedures. The main outcome has been the scheduling of an agenda to initiate a public consent process with the criteria and conditions under which these trials are activated.