The donation of biological samples for research purposes presents numerous ethical challenges including donors’ passive participation in research, the predominant use of broad consent forms, the absence of information on the use of biological samples, and the low level of communication between donors and research teams.

The aim of this project is to co-create and pilot a digital portal to address these challenges and other donor demands. Using this tool, donors will be able to make decisions in real-time in connection to their informed consent and know where their samples are being used, fostering compliance with ethical principles regarding autonomy and fairness.