11. Toolkit para formación en ética de la bioinformática (Ethics of Bioinformatics Training Toolkit
This publication is designed to support reflection on ethical issues in training for bioinformatics professionals.
It was produced by the Víctor Grífols Foundation UVIC-UCC Chair of Bioethics and Bioinformatics Barcelona (BIB) under the direction of David Casacuberta, lecturer and researcher at UAB.
This publication offers a set of tools designed to facilitate the task of planning an introductory course on bioethics for bioinformatics professionals. Although this kind of training is very important, it receives scant attention in curriculums. The book covers the main ethical theories and identifies the principal ethical problems faced in bioinformatics, before presenting tools and case studies for use in the classroom.
10. The ethics of care. Inclusive innovation and care quality
Helen Kohlen considers the ethics of care from a perspective that incorporates care quality and the well-being of those who receive care in our health and social institutions.
In this publication, Kohlen, who holds the Chair of Ethics and Politics of Nursing Care at Vallendar University of Philosophy and Theology in Germany, argues for incorporating the ethics of care in bioethics committees and moving towards a model of democratic care. The publication also includes draws on the experiences of health professionals who apply the ethics of care in their clinical, teaching, research and management projects.
This book presents the findings of the fourth edition of the Seminar on Ethics and the Values of Care, organized by the Official College of Nurses of Barcelona, in partnership with the Víctor Grífols i Lucas Foundation.
09. Tecnologías y nuevas relaciones en el cuidado (Technologies and new care relationships)
Ingunn Moser reflects on the impact of technologies on care relationships.
In this publication, the sociologist Ingunn Moser develops an evaluation and decision-making framework for the implementation of technology designed to improve well-being. The publication also includes contributions from professionals drawn from a range of disciplines who have been involved in major initiatives in this field. This book offers the conclusions of the third edition of the Seminar on Ethics and the Values of Care, organized by the Official College of Nurses of Barcelona, in partnership with the Víctor Grífols i Lucas Foundation.
To request a copy, please contact Anna Almirall firstname.lastname@example.org
08. Nuevas políticas del cuidar (New policies of care)
Marian Barnes reflects on care, a universal human experience where the need for alliances is paramount.
Marian Barnes, sociologist and social policy expert, approaches the ethics of care from a perspective that transcends illness and economic hegemony. This publication includes two lectures give at the seminar on Ethics and the values of care, organized by the Official College of Nurses of Barcelona, in partnership with the Víctor Grífols i Lucas Foundation.
07. Los niños y la investigación clínica: aspectos éticos
Conclusions and summary of the report entitled Children and Clinical Research. Only available in Spanish.
06. Participación de los niños y jóvenes en la investigación clínica: cómo hacerlo correctamente
Publication aimed at parents, children and adolescents.
Document only available in Spanish.
05. Luces y sombras en la investigación clínica
Lead by Rafael Dal-Ré, Xavier Carné and Diego Gracia, with collaborations from more than 40 authors
Dal-Re, R; Carné, X; Gracia, D; Lights and shadows in clinical research. Madrid: Triacastela; Víctor Grífols i Lucas Foundation, 2013 ISBN: 978-84-95840-83-7
The foundation has sponsored the publishing of this book that explores the positive and negative aspects of clinical research. Ranging from personal reflections made from the perspective of the patient, the investigator or the ethics committee, to innovative approaches to issues such as clinical trial design, how to reduce the complexity and how to analyze the benefit-risk balance of medicines.
Rafael Dal-Ré, Xavier Carné y Diego Gracia
Capítulo 1: La integridad científica como fundamento esencial de la investigación clínica
Santiago Lamas, Carmen Ayuso
Capítulo 2: Práctica clínica e investigación clínica
Capítulo 3: Investigación clínica: cómo hemos llegado hasta aquí
Rafael Dal-Ré, Xavier Carné, Diego Gracia
Capítulo 4: Los protagonistas del ensayo clínico
Juan García Puig, Rosa Torres Jiménez, Carolina Velasco García
Capítulo 4.2: La labor del Comité de Ética de Investigación en los ensayos clínicos
Neus Riba, Joaquín S. Peñataro
Capítulo 4.3: El paciente y los ensayos clínicos
Jordi Cruz Villalba
Capítulo 4.4: Qué esperan los pacientes cuando participan en los ensayos clínicos
Albert J. Jovell, Maria D. Navarro
Pilar Hereu, Josep Mª Arnau
Capítulo 6: ¿Es necesario que los ensayos clínicos sean tan complejos?
Gonzalo Calvo Rojas, Mohammed Ezzeldin Sharaf, Joaquín S. Peñataro
Capítulo 7: Cuestiones éticas y reguladoras de la finalziación prematura de los ensayos clínicos
Emilio Vargas Castrillón, Ana Isabel Terleira Fernández, Antonio Gómez Outes
Capítulo 8: Aspectos metodológicos y éticos de los ensayos clínicos en conglomerados
Esther Prieto Martín de los Santos, Antonio Portolés Pérez
Capítulo 9: Nuevos diseños en investigación clínica
Caridad Pontes, José Ríos, Ferran Torres
Capítulo 10: Cómo manejar los hallazgos inesperados en investigación genética
Carmen Ayuso, José Mª Millán, Rafael Dal-Ré
Capítulo 11: La farmacogenética desde una perspectiva crítica
Teresa Cabaleiro, Dolores Ochoa, Francisco Abad Santos
Capítulo 12: Los resultados comunicados por los pacientes en los ensayos clínicos
Michael Herdman, Núria Fernández
Capítulo 13: Evaluación de la relación beneficio-riesgo de los medicamentos: evidencia, cuantificación e incertidumbre
Andrew Maguire, Francisco J. de Abajo
Capítulo 14: Investigación comparativa de la efectividad
Antonio J. Carcas Sansuán
Capítulo 15: Iniciativa europea para la realización de ensayos clínicos académicos
Nuria Sanz, Jacques Demotes, Christine Kubiak
Capítulo 16: El papel de los biobancos en la investigación clínica
Sandra Zazo, Federico Rojo
Capítulo 17: El futuro de los ensayos clínicos con medicamentos
César Hernández García, Mariantonia Serrano Castro, Luis Arturo Pérez Bravo
Capítulo 18: La investigación clínica en países de renta baja
Xavier Carné, Esperança Sevene, Clara Menéndez
Capítulo 19: Proceso de revisión por expertos
Francesc Cardellach, Josep M. Ribera, Marta Pulido
Capítulo 20: La comunicación de los resultados: cuando la integridad se rompe
Capítulo 20.2: ¿Puede Vd. confiar en los resultados que se publican de los ensayos clínicos?
Capítulo 22: Los conflictos de intereses en el desarrollo de las guías de práctica clínica
04. Confesiones de un médico
The Spanish version of 'Confessions of a Medicine Man: An Essay in Popular Philosophy'
Tauber, A; Confesiones de un médico. Un ensayo filosófico. Madrid: Triacastela; Fundació Víctor Grífols i Lucas, 2011. ISBN: 978-8495840-60-8
Triacastela, with sponsorship from the Foundation, has published the Spanish version of Confessions of a Medicine Man: An Essay in Popular Philosophy. In his book, Alfred Tauber offers a personal introduction to the history of bioethics, to the evolution of the healthcare system in the United States and to the main 20th century philosophical schools of thought through illustrative autobiographical episodes in the life of a doctor.
Alfred Tauber is one of the main medical humanities authors in the United States. He is Professor of Medicine and Professor of Philosophy at Boston University and for many years he was director of the Boston University Center for Philosophy and History of Science. His book Confessions of a Medicine Man won the prize for the best academic book awarded by the American Libraries Magazine and also the American Medical Writers Association first prize.
Available in bookshops and other customary points of sale.
03. Advice to health professionals caring for patients at the end of their lives
Foundation collaborates with Bioethics Committee of Catalonia to produce publication
The Foundation has collaborated with the Bioethics Committee of Catalonia to publish the manual Recomendaciones a los profesionales sanitarios para la atención a los enfermos al final de la vida. [Advice to health professionals caring for patients at the end of their lives] The document is designed to help professionals caring for patients who are near the end of their lives, whatever the discipline or specialism.
The handbook has not been designed as a theoretical treatise or a technical protocol, but rather is intended to be a useful document which will help understand the values which should underpin care for those who are dying. The issues it considers include basical clinical decisions, providing assistance in different care settings, and clarifying some of the confusions regarding ethical and legal issues. The book has been published in Spanish and Catalan, and can be downloaded in PDF format.
02. Ética en enfermería (Nursing Ethics)
The book offers an in-depth exploration of nursing ethics content from the western philosophical tradition and some of the methods used in teaching this content.
Davis, A.J.; Tschudin, V.; de Raeve, L.; Ética en enfermería. Conceptos fundamentals de su enseñanza. Madrid: Ed. Triacastela; Fundació Víctor Grífols i Lucas, 2009. 396 p. ISBN: 978-84-95840-40-0.
Edited by Anne Davis, Verena Tschudin and Louis de Raeve, the book also includes the collaboration of several nursing experts.
It addresses cross-cultural issues in using specific ethics content. It also reveals the poverty of the present dualism model in nursing ethics and replace this with a more complex and more useful model that invites debate. Its scope is both wide and deep but that is needed to enrich the basis for teaching nursing ethics.
Available at bookshops and usual points of sale.
01. Ética clínica
The Foundation and editorial Ariel have made this practical manual designed to confront ethical problems which arise in clinical practice more readily accessible to the Spanish speaking public.
Ética Clínica: aproximación práctica a la toma de decisiones éticas en la medicina clínica. (Clinical Ethics: a practical approximation to ethical decisión making in clinical medicine) Barcelona: Ed. Ariel; Fundació Víctor Grífols i Lucas, 2005. 351 p.ISBN: 84-344-3719-5. 20,00€.
With the translation of Clinical Ethics, the Foundation and editorial Ariel have made this practical manual designed to confront ethical problems which arise in clinical practice more readily accessible to the Spanish speaking public. Clinical Ethics offers the method of the four parameters, some illustrated examples of clinical cases, the most widely accepted opinions on the most polemic questions of our time, reflections of an ethical nature and practical coverage of legal aspects. In short, a modern guide to ethics in medical assistance.
Available at bookshops and usual points of sale.
Pedagogía de la bioética. Comunicaciones.
Publication containing communications presented at 1st International Bioethics Conference, organized by the Grifols Foundation Chair of Bioethics at Vic. Addresses a range of topics related to health professionals, university teaching, bioethics and the relationship between bioethics and society.
Only available in pdf format.
Rethinking the body
This publication reflects on different ways of understanding the body, from three different perspectives: the shift from the body as an object to the body as subject; the body from the artistic perspective; and the insights of psychoanalysis.
03. Surrogate pregnancy: an analysis of the current situation
Most coutries prohibit surrogate pregnancy also know as surrogate motherhood or "Mathers for hire". Due to this legislation many people travel to other countries where local legislation allows them to do this. Philosophers, doctors, lawyers and psycologists give their explanations on the current situation surrounding this assited reproduction technique.
02. Sexuality and the emotions. Can they be taught
This publication is the result of dialogue between a group of education experts with an interest in sex education. It is designed to offer a set of ideas, opinions and considerations on this subject to those responsible for educating children and adolescents (parents, teachers, sociologists, etc.).
01. What should we do with persistent sexual offenders
The Victor Grifols i Lucas Foundation offers the discourses from the workshop "What should we do with persistent sexual offenders?" This debate workshop formed part of the "Ethical Questions" series and was attended by the following participants: Enrique Echeburúa, Professor of Clinical Psychology at the Universidad del País Vasco; Mercedes García Arán, Professor of Law at the Universitat Autònoma de Barcelona; José María Mena Former Director of Public Prosecutions of the Catalonian High Court of Justice; Joan Carles Navarro, Director of Can Brians penitentiary and Santiago Redondo Illescas, full time Professor of Psychology and Criminology from the Psychology Faculty of the Universitat de Barcelona.
Cities that care, including at the end of life
Ensuring that our cities are places where we care for the vulnerable is everyone's responsibility, and this is never more true than at the end of life. The requirement to attend to those who unwillingly find themselves alone requires us to make our cities friendlier and more welcoming, creating environments that can be inhabited by people of different ages and with different capacities. Published in Spanish.
56. La salud pública, el género y la ética
Most human societies continue to embody patriarchal attitudes and behaviours which lead to gender discrimination, both with regard to health protection and with respect to care practice and the design of health policies. This monograph addresses the issues from these three perspectives, drawing on the contributions of philosophers and health professionals with expertise in gender and health.
Soledad, envejecimiento y final de la vida
Increased life expectancy and low birth rates are leading to the rapid ageing of the population, along with a rise in chronic illness and high levels of dependency. Our society has an ethical duty to support settings designed to ensure that those who are alone can be accompanied during the end of life process, receiving appropriate care that respects their values and preferences.
54. Sexualidad y diversidad funcional (Sexuality and functional Sexuality and functional diversity)
Some people with disabilities or functional diversity have emotional, erotic and sexual needs that can only be satisfied with the help of specialist services (for example involving a sexual assistant). Families, guardians and institutions often do not provide this support because they do not recognize the person's sexuality or they do not approve of such services, for moral or political reasons. This monograph addresses this issue, taking as its starting point a document drawn up by Fundación Pere Mitjans.