All publications

Collaborations

Collaborations

Guide for creating mobile apps in health

13. Guide for creating mobile apps in health

Guide with technical, ethical and functional recommendations for the creation of mobile applications.

Fundación Tic Salut Social, a body of the Department of Health of the Government of Catalonia, has published a guide to creating mobile apps, following basic principles of ethics, security, accessibility, user-friendliness, interoperability and reliability.

 

The Grífols Foundation Chair of Bioethics contributed to the guide, in partnership with other universities, and technology, health and social institutions. The document is a compendium of recommendations designed to support the creation of effective, user-friendly, safe applications that guarantee the rights and freedoms of users.

 

It encompasses both the technical and the ethnical and functional aspects that any mobile application must incorporate in the initial phases of the development Project.

 

Published in Catalan.


12. Teaching bioethics

12. Teaching bioethics

The thoughts of a range of authors on how to address the challenges of education in bioethics.

The 1st International Congress of Bioethics, held in Vic on 24 and 25 January 2019, focused on analyzing and improving the teaching of bioethics, with the aim of transcending the academic and clinical settings to reach the general public.

 

This book presents the proceedings of the conference and gives voice to personal experiences which often struggle to find a space to be heard. It addresses the topic of the teaching and learning of bioethics, identifies the challenges we face, considers how the subject is approached in professional training, and describes a range of experiences in international settings.

 

On sale here


11. Toolkit para formación en ética de la bioinformática (Ethics of Bioinformatics Training Toolkit

11. Toolkit para formación en ética de la bioinformática (Ethics of Bioinformatics Training Toolkit

This publication is designed to support reflection on ethical issues in training for bioinformatics professionals.

It was produced by the Víctor Grífols Foundation UVIC-UCC Chair of Bioethics and Bioinformatics Barcelona (BIB) under the direction of David Casacuberta, lecturer and researcher at UAB.

 

This publication offers a set of tools designed to facilitate the task of planning an introductory course on bioethics for bioinformatics professionals. Although this kind of training is very important, it receives scant attention in curriculums. The book covers the main ethical theories and identifies the principal ethical problems faced in bioinformatics, before presenting tools and case studies for use in the classroom.


10. The ethics of care. Inclusive innovation and care quality

10. The ethics of care. Inclusive innovation and care quality

Helen Kohlen considers the ethics of care from a perspective that incorporates care quality and the well-being of those who receive care in our health and social institutions.

In this publication, Kohlen, who holds the Chair of Ethics and Politics of Nursing Care at Vallendar University of Philosophy and Theology in Germany, argues for incorporating the ethics of care in bioethics committees and moving towards a model of democratic care. The publication also includes draws on the experiences of health professionals who apply the ethics of care in their clinical, teaching, research and management projects.

 

This book presents the findings of the fourth edition of the Seminar on Ethics and the Values of Care, organized by the Official College of Nurses of Barcelona, in partnership with the Víctor Grífols i Lucas Foundation.


09. Tecnologías y nuevas relaciones en el cuidado (Technologies and new care relationships)

09. Tecnologías y nuevas relaciones en el cuidado (Technologies and new care relationships)

Ingunn Moser reflects on the impact of technologies on care relationships.

In this publication, the sociologist Ingunn Moser develops an evaluation and decision-making framework for the implementation of technology designed to improve well-being. The publication also includes contributions from professionals drawn from a range of disciplines who have been involved in major initiatives in this field. This book offers the conclusions of the third edition of the Seminar on Ethics and the Values of Care, organized by the Official College of Nurses of Barcelona, in partnership with the Víctor Grífols i Lucas Foundation.

 

To request a copy, please contact Anna Almirall aalmirall@coib.cat


08. Nuevas políticas del cuidar (New policies of care)

08. Nuevas políticas del cuidar (New policies of care)

Marian Barnes reflects on care, a universal human experience where the need for alliances is paramount.

Marian Barnes, sociologist and social policy expert, approaches the ethics of care from a perspective that transcends illness and economic hegemony. This publication includes two lectures give at the seminar on Ethics and the values of care, organized by the Official College of Nurses of Barcelona, in partnership with the Víctor Grífols i Lucas Foundation. 


07. Los niños y la investigación clínica: aspectos éticos

07. Los niños y la investigación clínica: aspectos éticos

Conclusions and summary of the report entitled Children and Clinical Research. Only available in Spanish.

Conclusions and summary of the report entitled Children and Clinical Research, conducted by the Nuffield Council on Bioethics. Fundació Víctor Grífols i Lucas has sponsored the Spanish edition of this document.
Clinical research with children poses a great deal of ethical questions. The Nuffield Council on Bioethics has published a report entitled Children and Clinical Research, which analyses how clinical trials can be performed on children in an ethically acceptable manner. It addresses issues such as the role of the different parties involved, child protection and involvement and the constraints posed by these kinds of studies. 
 
Document only available in Spanish.

06. Participación de los niños y jóvenes en la investigación clínica: cómo hacerlo correctamente

06. Participación de los niños y jóvenes en la investigación clínica: cómo hacerlo correctamente

Publication aimed at parents, children and adolescents.

Document only available in Spanish.

Publication aimed at parents, children and adolescents which summarises the main recommendations from the Nuffield Council on Bioethics regarding clinical research with children. The Spanish edition of this document is sponsored by Fundació Víctor Grífols i Lucas.
How can research studies on children be conducted in an ethically acceptable manner?  Which role should children, young people and parents play in order to influence the way these studies are conducted? The Nuffield Council on Bioethics has examined these issues with a working group comprised of experts, and backed up by parents and young people. The results are outlined in the following report: Children and Clinical Research. This document, aimed at patients and their relatives, summarises the main conclusions.
 
Document only available in Spanish.

Ethical questions

Ethical questions

Pedagogía de la bioética. Comunicaciones.

Publication containing communications presented at 1st International Bioethics Conference, organized by the Grifols Foundation Chair of Bioethics at Vic. Addresses a range of topics related to health professionals, university teaching, bioethics and the relationship between bioethics and society. 

Only available in pdf format.


Rethinking the body

This publication reflects on different ways of understanding the body, from three different perspectives: the shift from the body as an object to the body as subject; the body from the artistic perspective; and the insights of psychoanalysis.


Monographs

Monographs

58. Salud pública y COVID

No other pandemic has persuaded so many people to accept the imposition of preventive measures as drastic as those taken in response to Covid-19. These have included the suspension of some fundamental human rights, and far-reaching interference in the daily lives of individuals and organizations.

 

This publication looks at how Covid-19 has affected public health from three perspectives: citizens' participation; paternalism and freedom; and transparency and communication. It contains contributions from a number of professionals and was produced in coordination with the Spanish Society for Public Health and Health Administration (SESPAS).


Cities that care, including at the end of life

Ensuring that our cities are places where we care for the vulnerable is everyone's responsibility, and this is never more true than at the end of life. The requirement to attend to those who unwillingly find themselves alone requires us to make our cities friendlier and more welcoming, creating environments that can be inhabited by people of different ages and with different capacities. Published in Spanish.


56. La salud pública, el género y la ética

Most human societies continue to embody patriarchal attitudes and behaviours which lead to gender discrimination, both with regard to health protection and with respect to care practice and the design of health policies. This monograph addresses the issues from these three perspectives, drawing on the contributions of philosophers and health professionals with expertise in gender and health.


Soledad, envejecimiento y final de la vida

Increased life expectancy and low birth rates are leading to the rapid ageing of the population, along with a rise in chronic illness and high levels of dependency. Our society has an ethical duty to support settings designed to ensure that those who are alone can be accompanied during the end of life process, receiving appropriate care that respects their values and preferences.


54. Sexualidad y diversidad funcional (Sexuality and functional Sexuality and functional diversity)

Some people with disabilities or functional diversity have emotional, erotic and sexual needs that can only be satisfied with the help of specialist services (for example involving a sexual assistant). Families, guardians and institutions often do not provide this support because they do not recognize the person's sexuality or they do not approve of such services, for moral or political reasons.  This monograph addresses this issue, taking as its starting point a document drawn up by Fundación Pere Mitjans.


53. Nuevos escenarios en salud e investigación clínica (New scenarios for health and clinical research)

What is the future of healthcare? How will healthcare and health management change? Ezekiel J. Emanuel identifies six healthcare trends that will dominate our healthcare systems over the coming decade. His perspective is complemented by the contributions of scientists and health professionals, who identify the challenges currently faced by biomedical research.


52.Ética y promoción de la salud. Libertad-paternalismo. (Ethics and health promotion. Freedom vs. Paternalism)

Health promotion requires an explicit ethical commitment that charts a path between excessive paternalism, on the one hand, and the neglect of those who stand to benefit from community health promotion projects, on the other. This publication, the product of a seminar held jointly with SESPAS, addresses the ethical debate about how to combine these opposing values (freedom and paternalism) from a variety of perspectives.

Only available in Spanish.


51. Una mirada ética en la gestión de conflictos

During the provision of health services, conflicts with service users often arise, and these may lead to complaints and even end up in the courts. Mediation can help prevent further harm for all parties. But this mediation must be ethical, and guided by values such as dialogue, impartiality and transparency.


50. Pensar la maternidad (Thinking about motherhood)

In recent years, motherhood has changed rapidly, raising new ethical problems. This publication reflects on the psychological, social, economic, political and employment issues that condition motherhood in today's society.


49. Publicidad y salud (Advertising and health)

During the last two decades, the world of communication has undergone a radical transformation, which has also affected the health sector. This has had an impact not just on medical advertising but also – more widely – on all publicity that has an impact on health and lifestyles. This publication reflects on the main dilemmas raised by this new situation.