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To mark its 20th anniversary, the Federació Catalana de Malalties Minoritàries (Catalan Federation of Rare Disorders, FECAMM) will hold an event at the CaixaForum on 3 June in collaboration with the Fundació Víctor Grífols i Lucas.
This celebration will provide an opportunity for families of patients with rare diseases to get toether, play games and have fun. A parallel event will also be held to showcase the Federation’s work over the past twenty years, providing an opportunity to discuss rare diseases, milestones achieved and explore future prospects.
This event programme will include a presentation detailing FECAMM’s work over the past 20 years, a tribute to the people with rare diseases it has assisted during this time, as well as other presentations on the subject and a talk exploring the topic from a bioethical perspective. In addition, complementary activities will also be organized for rare disease sufferers as well as their families and companions.
3 June
6:00 - 8:00 p.m.
CaixaForum Barcelona
Av. de Francesc Ferrer i Guardia, 6-8
Event organized in collaboration with:
Registration Information
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The report includes activities, awards and bioethics publications for 2021, together with key organizational information.
In this talk given by Francesc Torralba, we will learn about how educational actions can be used to convey ethical values and the challenges this process entails. Afterwards, the floor will be open to all attendees to participate in the discussion on the topic.
Education is more than just passing on information. Education brings about personal transformation, but this is impossible without conveying ethical values first. That is why we will focus on the role of teacher and pupil and the obstacles that may hinder the process.
At the same time, discussion will also touch on which ethical values are needed in an uncertain and accelerated world such as ours.
Francesc Torralba holds a PhD in philosophy and theology and currently serves as a professor at the Ramon Llull University. He directs the Ethos Chair of Ethics and the Ramon Llull Journal of Applied Ethics.
5 June, 6:30 p.m.
In-person activity
Offices of the Amigos de la UNESCO de Barcelona
c/Mallorca, 207 Barcelona
In partnership with:
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This edition of Quaderns reflects on the need for care to transcend the private sphere