On 22 July, a session to discuss financing and health delivery priorities will be conducted at Pompeu Fabra University.
This session includes two conferences:
15 – 16 h. "Using health services research for priority setting in health care: UK's NICE and other models", by John Cairns, professor at London School of Hygiene and Tropical Medicine and member of National Institute for Health and Clinical Excellence Appraisal Committee.
16 – 17 h. "Spending on health care; How much is enough?", by Lise Rochaix, chair of Economic Evaluation and Public Health Committee of Haute Autorité de Santé.
17 – 17:45 h. Discussion.
Address: Universitat Pompeu Fabra. Ramon Trias Fargas, 25-27. Roger de Llúria building. Sala de Graus Albert Calsamiglia. Barcelona.
This event, sponsored by the Foundation, is part of the Global Health Leadership Forum: a health management seminar organized by the Barcelona Graduate School of Economics, the Centre for Research in Economics and Health (CRES) and the University of Berkeley.
Registration for this event is now closed, since the maximum room capacity has been reached.
Different specialists point out the new opportunities that the Web 2.0 offers to both patients and to the health system.
Despite the number of different initiatives, internet forums and virtual communities that facilitate new ways of relating to one another over the internet, current healthcare models have still not made any significant progress in this field. There are some very cautious steps forward and even some trial programs are underway, but the Web 2.0 continues to be one of the current challenges for many of our institutions.
This was the overall conclusion according to the experts who took part in the course "e-patients, Web 2.0 and empowerment" organized by the Victor Grifols i Lucas Foundation and the Observatory for Scientific Communication at the Pompeu Fabra University on May 16. Journalists, experts from patient associations, managers, e-health consultants, and teachers discussed the new ways in which we relate to one another in the healthcare sector over the internet and the current challenges faced by both patients and healthcare professionals.
Gemma Revuelta and Vladimir de Semir, deputy director and director of the Observatory for Scientific Communication at the Pompeu Fabra University and two of the working grups.
Audio lectures from Margarita Delgado and Maria Jesús Comellas, also available
The Foundation has placed on YouTube a video of the presentation of the document: Sexuality and the emotions. Can they be taught? This document was presented in Barcelona on March 23 by Rosa Ros, director of the Young People's Centre for Contraception and Sexuality (CJAS)
Following the presentation, there were two lectures:
"Adolescent maternity and how it affects the course of lives". Margarita Delgado, Sociologist and Scientific Researcher at the Spanish National Research Council (CSIC). Margarita Delgado - Spanish (4.08 MB)
"Education in harmony: Emotions, sexuality and co-existence". Maria Jesús Comellas, Psychology Professor at the Autonomous University of Barcelona. Ma. Jesús Comellas - Catalan (2.18 MB)
YouTube video available soon
Training Course in collaboration with the Pharmaceutical Care Foundation and the Alcalá University. 11 and 12 April.
The Pharmaceutical Care Foundation and the Victor Grifols i Lucas Foundation in joint collaboration with the Alcalá University on 11 and 12 April will hold the course: Economic crisis and the right to health protection: the use of medicines. Among other issues, from the ethical standpoint, the course will discuss the use of medicines, innovation, the welfare state and attention give to chronically-ill patients.
11 and 12 April.
Alcalá University. Faculty of Pharmacy.
Ctra. Madrid-Barcelona (Autovía A2) Km. 33,600.
Alcalá de Henares (Madrid).
Registration:: 70 €. Enter the calendar and go to April 11 for further information.
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Maleficence in Prevention Programs, Consent by representation and Surrogate pregnancy
The Foundation has translated into English the following publicacions: Maleficence in Prevention Programs , Consent by representation and Surrogate pregnancy: an analysis of the current situation . On March also will be available English edition of La ética, esencia de la comunicación científica y médica(Ethics, the essence of scientific and medical Communications).
On March 23 at 19:00 h. at the Palau Robert in Barcelona
Registration for this event is now closed, since the maximum room capacity has been reached.
On March 23 at 19:00 h. at the Palau Robert in Barcelona, a presentation will be made of the document Sexuality and the emotions: Can they be taught? This document, published by the Víctor Grífols i Lucas Foundation, aims to provide parents, teachers and healthcare professionals with a series of reflections on child and adolescent sexual education.
The presentation will be chaired by: Victòria Camps, president of the Víctor Grífols i Lucas Foundation and Ismael Palacín, director of the Jaume Bofill Foundation.
Presentation:
Rosa Ros, director of the Centre Jove d'Anticoncepció i Sexualitat and coordinator of the document.
Lecture:
Educació en harmonia: afectivitat, sexualitat i convivència
Ma. Jesús Comellas, Psychology Professor at the Universitat Autònoma de Barcelona.
La maternidad en la adolescencia y su influencia sobre la trayectoria vital
Margarita Delgado, Sociologist and Scientist Researcher at the Consejo Superior de Investigaciones Científicas.
A copy of the document will be handed out to those who attend.
Registration for this event is now closed, since the maximum room capacity has been reached. Please take note that you can download the pdf file Sexuality and the emotions: Can they be taught? The foundation will upload a video of the presentation and event conferences to YouTube.
The Foundation wishes you Merry Christmas and a Happy New Year.
We look forward to the new year with fresh proposals and projects which we hope to be able to share with you.
Happy 2010!
The Foundation recently edited the monographs: Ethics, an essential element of scientific and medical communication and Surrogate pregnancy: an analysis of the current situation
The Foundation recently edited two publications. Ethics, an essential element of scientific and medical communication is published in Spanish and Surrogate pregnancy: an analysis of the current situationis available in three editions (Catalan, Spanish and English). These documents can be downloaded on the Foundation web.
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Several experts analyze basic ethical principals that arise when faced with preventions programms.
Published in Spanish. English version available soon in pdf format.
Maleficencia en los programas de prevención (Maleficence in prevention programmes)
Summary of the course "The elderly sick patient" delivered on 11 and 12 november, now available on the website.
On 11 and 12 November the Menéndez Pelayo Centre Ernest Lluch International University Consortium in Barcelona, together with the Víctor Grífols i Lucas Foundation and the Letamendi Forns Foundation, organized the training course "The elderly sick patient: frailty and autonomy".
Article published at La Vanguardia.
The Foundation has placed two videos of the opening day of the 4th cycle of Josep Egozcue lectures on YouTube
The videos show segments of Mark Siegler's opening speech and the awards and bioethics scholarships ceremony. By taking this initiative, the Foundation opens a new communications channel with its users, giving them the chance to see the highlights of its most important activities.
11 and 12 November at Centre de Cultura Contemporània in Barcelona. Co organized with CUIMPB
The Foundation and the Consorci Universitari Internacional Menéndez Pelayo-Centre Ernest Lluch de Barcelona (CUIMPB) have renewed their collaboration to organize this training activity. On this occasion, the topic of the course is "The elderly sick patient: frailty and auntonomy". It will take place on 11 and 12 November at the Centre de Cultura Contemporània in Barcelona.
The course will explore the issue of the competency of elderly people, how they are treated, and how we accompany them. The speakers will be James Drane, professor at the Edinboro University of Pennsylvania; Begoña Román, professor of ethics at the University of Barcelona, and Mercè Pérez Salanova, head of the Psychosocial Area and Participation at the Autonomous University of Barcelona.
Place: CCCB. Montalegre, 5 08001 Barcelona
Registration
www.cuimpb.cat
15 grants available. Applications to fundacio.grifols@grifols.com
The Foundation's Jury for the Bioethics Awards & Grants in has recently announced the winners of this Edition.
Prize for Research:
The bioethics award went to Josefina Goberna Tricas, Professor at Escola Universitària d'Infermeria of Universitat de Barcelona for her work: Dones i procreació: ètica de les pràctiques sanitàries i la relació assistencial en embaràs i naixement (Women and procreation: ethics in the medical practice and the healthcare relationship during pregnancy and birth).
Journalism Prize:
The prize for journalistic work on bioethics is awarded to the team behind the current affairs program 30 minuts broadcast by Televisió de Catalunya for the episode titled: Decidir la mort (Decision to die), which was shown on 4th October 2009.
Research Grants were awarded to:
The team led by Joan Canimas of the Campus Arnau d'Escala Foundation for their: Guia orientativa per a guardadors de fet de persones amb malaltia d'Alzheimer als quals es proposa participar en projectes de recerca clínica (Orientation guide for de facto guardians of people with Alzheimer's disease who decide to take part in clinical investigation projects).
The team led by Sara Fidel Kinori of the Psychiatry and Mental Health Research Group at the Vall d'Hebron University Hospital for their Study: Protección de la confidencialidad en las historias clínicas informatizadas: los pacientes en la consulta de Salud Mental hospitalaria (Protecting confidentiality in digitalized clinical records: patients under mental health hospital consultation).
The team led by Montserrat Guillaumet of the Escola Universitària d'Infermeria Sant Pau for their research: L'experiència de ser cuidat en un hospital. Perspectiva des del client immigrat econòmic extracomunitari (The experience of being cared for in hospital from the perspective of the non EC economic immigrant).
The team led by José Luís Villanueva in a multi-center study carried out at five Madrid hospitals for their study: Ventilación mecánica, gastrostomía percutánea y toma de decisiones en pacientes con ELA: encuesta sobre la opinión de los pacientes, familiares y médicos (Mechanical ventilation, percutaneous gastrostomy and decision making in patients with ALS: an opinion survey among patients, their relatives and doctors).